Introduction

Welcome to the CJD Support Network website.

The CJD Support Network is a patient support group providing help and support for people with all strains of Creutzfeldt-Jakob disease, their carers and concerned professionals.

It also provides support for people who have been informed that they are at a higher risk of CJD through secondary transmission i.e. blood transfusion or surgical instruments.

Established in 1994 by relatives of people with CJD and is now recognised as the leading charity for all forms of CJD. Charity registration number 1097173

• Providing accurate, unbiased and up-to-date information about all forms of CJD through an expanding range of information sheets, leaflets and newsletters.
  
  
• Promoting good quality care for people with CJD, by providing training, workshops, conferences, and by encouraging the adoption of good practice guidelines
  
  
• Campaigning through regular contact with ministers and senior government officials
  
  
• Promoting research into CJD.
  

The Network:

• Provides practical and emotional support to individuals affected by CJD and their families.

• Provides practical and emotional support for people who are informed that they are at a higher risk of secondary transmission CJD through a blood transfusion or surgical instruments.

•  Supports families in financial need through caring grants
  
  
• Links families with similar experiences of CJD, for mutual support
  
  
• Runs a national helpline giving information on all forms of CJD.
  CJD Support Network helpline: 01630 673973
  

If you have found the information on this website helpful

We are the lead Charity for Creutzfeldt Jakob Disease, as a small Charity we are dependent mainly on public donations.

If you have found the information helpful on this website we would be grateful, if you felt able,  to make a small donation to help us raise awareness of CJD by providing accurate and up to-date information on all strains of CJD and  help fund a 24 hour helpline for emotional and practical support to families affected by this devastating disease.

Donating to the CJD Support Network is very easy by clicking on www.justgiving.com and following the link to the CJD Support Network.  Any donation you give will help us to maintain our 24 hour helpline and provide emotional and practical suport to people affected by CJD.