Who we are

The CJD Support Network was established in 1995 by relatives of people who have died with CJD and is now recognised as the leading charity for all forms of CJD. Our aims are:

• To offer support to individuals and families concerned with all forms of CJD.
• To provide emotional support for carers and to link families with similar experiences of all forms of CJD.
• To offer financial support for families in need.
• To provide accurate, unbiased and up to-date information and advice about all forms of CJD.
• To provide a national helpline on all forms of CJD.
• To promote good quality care for people with all forms of CJD.
• To promote research into all forms of CJD and the dissemination of research findings.
• To develop a public response for all forms of CJD

Our elected volunteer management committee includes carers and relatives of people who have died from all forms of CJD, plus co-opted professional advisers:

National CJD co-ordinator: Gillian Turner Email:cjd.support@cjdsupport.net)

Chairman: Dr Angus Kennedy
Secretary: Sarah Tomkins
Treasurer: Mike Curtis

Committee members
Judy Kenny
AnitaTipping
Andy Tomaso
Prof. Richard Knight
Alison Kenny
Eve Buckland

Co-opted members

Roger Tomkins
Dr Andrew Smith (Dental Adviser).                                                                            Derek Biggs, Representative for the Association of Directors of Social Services

 

The CJD Support Network is an independent charity. Charity Registration Number 1097173

If you would like more information or wish to join the Network you can do so by registering with us. Membership is free to carers of people with CJD, although we welcome donations if you feel able to support our work.
Go to related webpage: get involved with the CJD Support Network