CJD Links

The BSE Inquiry
The official site for the Bovine Spongiform Encephalopathy Inquiry.
Go to website: http://www.bse.org.uk

Creutzfeldt-Jakob Disease Surveillance Unit
The incidence of Creutzfeldt-Jakob disease (CJD) is monitored in the UK by the CJD Surveillance Unit based at the Western General Hospital in Edinburgh, Scotland. The Unit brings together a team of clinical neurologists, neuropathologists and scientists specialising in the investigation of this disease.
Go to website: http://www.cjd.ed.ac.uk

Official Mad Cow Disease Home Page
A project of Sperling Medical Foundation. Contains more than 5,000 articles on Creutzfeldt-Jakob disease, prions, bovine spongiform encephalopathy, scrapie, BSE, CJD, CWD, TME and TSE.
Go to website: http://www.organicconsumers.org/madcow.cfm

Department of Health CJD Guidance
Department of Health practical guide for health workers caring for someone with CJD.
Go to website: http://www.dh.gov.uk/AdvancedSearch/SearchResults/fs/en?NP=1&PO1=C&PI1=W&PF1=A&PG=1&RP=20&PT1=cjd+guidance&SC=__dh_site&Z=1

Guidelines for Social workers
In conjunction with the Association of Directors of Social Services the CJD Support Network have produced guidelines for social workers. Go to website:
www.adss.org.uk/committee/disabilities/cjd-amend.pdf

In October 2000, the Secretary of State announced that the Government would pay compensation to the victims of vCJD and their families. Information on the compensation scheme and how to claim is available on the vCJD Trust website.
Go to website: http://www.vcjdtrust.co.uk

The Brain & Spine Foundation

The Brain & Spine Foundation aims to   improve the quality of life for people with neurological disorders and to reduce neurolgical disability by providing a national focus for research, education and information.

Go to website:  http://www.brainandspine.org.uk/helpline/a_to_z_of_useful_websites/index.html