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Learn more about CJD and Prions Disease in our booklet
Welcome to the CJD Support Network website
The CJD Support Network is the only UK charity providing emotional and practical support for all strains of CJD and for those who are at greater risk of CJD.
In our website you will find how to contact us for information and support, learn more about the four types of CJD, see what we do as a support network, access our factsheets and newsletters and see how you can help the work of the network, plus much more...
Newsletters
Read our latest newsletter for information and personal CJD stories
We have been asked by Ionis Pharmaceuticals to share this survey below in relation to people affected by prion disease, including at-risk individuals, caregivers, former caregivers and current patients. This is to provide their perspectives on and experiences with genetic testing through the survey they have created. * Please note that the CJD Support Network has no direct involvement with this company nor holds a particular view on this survey* Link to survey below:
https://clarityco.qualtrics.com/jfe/form/SV_eIO0ze2ua5kyT0q?wave=4.
is the lifetime risk of CJD
This is the statistical probability of someone in the general population getting CJD
there are 4 strains of CJD
Click here to find out more