Since we lost our statutory funding we have been totally dependent on fundraising and public donations to finance our work with patients and families. Many people take part in events both big and small to raise money for the Network.

Donating to the CJD Support Network    

Probably the simplest way to donate to the Network is to use the Just Giving link below the menu on the left of the website or click here.

Alternatively you can post a cheque [ made payable to the CJD Support Network ] to our address, which can be found under Contact Us or by clicking here .

All donations will be acknowledged and are received with grateful thanks. If the donation is in memory of a loved one, please make this clear and your loved ones name will be added to our In Memorium page at the end of the year.


Fundraising events can be big or small. People have climbed Everest for us and others have organised coffee mornings. Both are brilliant!

We are grateful for all offers to help raise funds for the Network. For those who wish to organise events, we can give advice and materials, such as pens, T-shirts, button badges, collecting boxes and leaflets. You can download a fundraising sponshorship form by clicking here and saving it to your computer.

If you are considering taking part in, or organising a fundraising event, please contact the Network to discuss how best to organise your event.

There is also a Fundraising link on our Just Giving website.

To contact us to discuss fundraising please email This email address is being protected from spambots. You need JavaScript enabled to view it., call 07494 211 476 (Tuesday and Friday, 8am-6pm) or click here.



Thank you to all our Families and fundraisers.

We are so very grateful to all the fundraisers who have run, swum, cycled, climbed, done parachute jumps, organised coffee mornings and much more to raise money for the Network, as well as families who have given donations in memory of loved ones.

Without this money the CJD Support Network would not survive and so in over 25 years of providing support to individuals, families and professionals, we would like to say a big THANK YOU  to everybody who has supported our work in this way. We would like to assure you that every penny will be used in our work supporting patients, families and carers affected by all types of CJD.