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We’re here to help

The CJD Support Network is the only UK charity providing emotional and practical support for all forms of CJD & prion disease and for those who are at greater risk.

⸺ Find out more

How can we help?

We can provide information on the different forms of prion disease, guidance, and support by telephone and email, and connect you with others who have similar experiences.

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A Friendly Voice

Call us on: 0800 774 7317

Our helpline is open from 8am-6pm on Tuesday & Friday. Messages left outside of these hours will be responded to as soon as possible.

Join In

Stay connected with us and remain up to date with our work by joining our mailing list here.

Let's Get Social

Join our Facebook group here.

Follow us on Facebook here, and Twitter here.

News and Events

Keep up to date with all of our latest news and events by joining our mailing list or visiting our news and events pages.

An Email Away

Contact us at [email protected] with any questions or support queries.

Fundraise

We are totally dependent on fundraising and donations to continue our work. To get involved visit our fundraising and donation pages.

WHO WE ARE

Our Story

KNOW THE FACTS

What is CJD?

WE ANSWER THE QUESTIONS

FAQ's

HELPING YOU

Useful Links

1 in 5,000

Is the lifetime risk of CJD

3 Types

CJD can be sporadic, genetic or acquired

20+ Years

We’ve offered support

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