We would like to assure everyone that the CJD Support Network support services are continuing to be available during this time of unprecedented disruption throughout the World.

Our free helpline is available on 0800 085 3527, providing information and support 24 hours a day and of course all our information booklets and newsletters are available to download from our website.

We would like to say how sorry we are to so many of our fundraisers who have had their planned events cancelled, due to the Coronavirus epidemic.

Finally may we express our best wishes to everyone, to keep yourself and your families safe and healthy during this unique and worrying time.

To go to all Latest News items please click here

Good news. We have now fixed the days for our annual family support meeting. if the country has got back to "normal". It will be held at the Manchester Macdonald Hotel on Friday 13th and Saturday 14 November 2020. Further information will be released as soon as we know what is happening regarding coronavirus.

To go to all Latest News items please click here

The CJD Support Network has been selected as a 'Core Participant' in the Infected Blood Enquiry

To find out more about the Inquiry please click here

To go to all Latest News items please click here

Updated 6 February 2020 - In 2018, University College London Hospital (UCLH) began treating a patient with Sporadic CJD, with the PRN100 drug, which has been developed by researchers at the Medical Research Council (MRC) Prion Unit, at University College London. This drug, which had not been used in humans before, was administered after a judge confirmed that although the drug is unlicenced, it was lawful and in the patient’s best interests for them to receive treatment.

The sixth patient has recently started  this antibody treatment.

In 2019, Professor John Collinge, Director of the MRC Prion Unit at UCL, said: “All of these patients have been at different stages of their disease when they began to receive the antibody. It is too early to determine if, or to what extent, the treatment has had an impact on their condition.”

To go to the latest update article on the UCLH website, please click here 

To see all News items, please click here