The Family Support Meeting is getting close !
Attendance at the meeting is free, but you MUST register, so we  know numbers to plan for.
Please read on to see the details including the programme and about attending the Friday evening get-together and dinner.

The CJD Support Network 2019 Family Support Meeting will be held
on Friday 15th and Saturday 16th November, 
at the McDonalds Burlington Hotel, New Street, Birmingham. B2 4JQ

 By Annette Beal 

My late husband Mick, who died of sCJD, loved his greyhound racing.
He was also a kennel hand – 
I still have his retired dog at home with me.

 

Our dear friends Martin and Carol Haythorne, who are greyhound trainers,
have bred a greyhound and in memory of Mick
her racing name is ‘Mick’s Baby Girl’.
She is owned by Carol and me, is trained by Martin and runs at Doncaster Greyhound Stadium. 

 At Martin’s request any money received from running (run money) will be donated to the CJD Support Network. 

STOP PRESS !

Click here to see a video of Mick's Baby Girl racing at Doncaster  (She is dog number 4)

So far, Mick's Baby Girl has raised £266, which has been generously donated to the CJD Support Network, by her and her trainer, Martin Hawthorne

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2019 sees the first ever raffle organised by the CJD Support Network. The prizes are great and all the profits will go towards subsidising the cost of the Family Support Meeting on 15-16th November 2019

Prizes include:

• A Portrait of the Winner – painted by Diane Louise Newell, international artist

• A Crystal Head of Vodka – the Rolling Stones 50th anniversary commemorative pack, 70cl

Gin in a basket – two litre bottles of gin, a range of tonics, some small bottles of gin, a box of gin spices, gin handwash, all gin-themed and attractively parceled

£100– Kindly donated by friends of the Network

On Thursday 11 July at 9pm, BBC 2 broadcast a programme  'Mad Cow Disease - the Great British Beef Scandal'.

 We watched this programme and these are our personal opinions.

Those involved with CJD, including the CJD Support Network, will never forget this time and the tragic loss of many young people, who died of vCJD.

We understand that the title  'Mad Cow Disease' is offensive and very upsetting to many families who have lost loved ones through this terrible disease. The CJD Support Network understand that the BBC were made aware of this, but decided to go ahead with the title.