2019 sees the first ever raffle organised by the CJD Support Network. The prizes are great and all the profits will go towards subsidising the cost of the Family Support Meeting on 15-16th November 2019

Prizes include:

• A Portrait of the Winner – painted by Diane Louise Newell, international artist

• A Crystal Head of Vodka – the Rolling Stones 50th anniversary commemorative pack, 70cl

Gin in a basket – two litre bottles of gin, a range of tonics, some small bottles of gin, a box of gin spices, gin handwash, all gin-themed and attractively parceled

£100– Kindly donated by friends of the Network

 Date for your diary: 

The CJD Support Network 2019 Family Support Meeting will be held
on Friday 15th and Saturday 16th November, 
at the McDonalds Burlington Hotel, New Street, Birmingham. B2 4JQ

Alison Hills, who lives in St Albans, ran the Edinburgh marathon for CJD in January.

Through her Just Giving Page and other donations, Alison has raised a magnificant total of £1,087 for the Network.

This was boosted from the amount actually donated, by gift aid of £114, which shows the benefit of agreeing to gift aid any donations made to charities. 

We would like to thank Alison and all fundraisers for their gererous effort in raising the money which enables the CJD Support Network to run and to support all those affected by this terrible disease.

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 I’m cycling 100 miles on August 4th this year !

I was fortunate to get a place in the "Prudential RideLondon - Surrey 100" ballot, so I’ve decided to forego “free-cycle-jerseys”, “cheer-teams”, “post ride showers”, “massages” and “after-parties” to raise money for a cause that’s closely affected my family and me.

Ten years ago my Dad lost his life to CJD - a devastating disease that's both frightening and confusing for all of those affected - patients, family members and carers alike.

So, I’m looking to raise as much money as possible to be split between:

The CJD Support Network www.cjdsupport.net

and

The Cure CJD Campaign www.curecjd.org (part of UCLH Charity

Please give what you can - every penny counts - and think of me on Box-Hill - don't forget, I’m more akin to going down than going up!!

To donate please click this link

Thank you so much

Jonathan

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