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Latest News

International CJD Awareness Day 2022

 

 

As some people will already know, the 12th November 2022 is International CJD Awareness Day, a day when we come together with our friends across the world to raise awareness of CJD. 

To mark the day, we will be drawing our 2022 raffle. If you would like to buy tickets, or encourage friends and family to buy tickets and raise awareness in the process, please feel free to follow or share this link:   www.justgiving.com/campaign/CJDSNraffle2022

We will also be hosting a takeover of the Genetic Alliance UK twitter account @GeneticAll_UK, sharing posts throughout the day to raise awareness of CJD to their 15.4k followers. As part of this, we will also be creating content which all are welcome to share via social media to raise awareness. Keep an eye on our website for this! 

Finally, we still have awareness raising items available to purchase for just £1 each (plus p&p) including pens, badges and wristbands. These can be worn and used on 12th November 2022, and all year round, to raise awareness at home, work, and school. Please email This email address is being protected from spambots. You need JavaScript enabled to view it. for details of how to buy items.

 

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News and Events

  • Spring 2022 Newsletter now available!

    May 13, 2022
    The CJD Support Network is pleased to announce that our latest Newsletter (Jan 2022) is now availabl... Read More...
  • Restricted service 5th-19th April

    April 01, 2022
    01-04-2022 The CJD Support Network will be temporarily unable to respond to emails between 5th and ... Read More...
  • Results of PRN100 treatment programme published

    March 17, 2022
      Researchers at the Medical Research Council (MRC) Prion Unit at University College London ... Read More...

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