15-2-22

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Having last published a Newsletter in July 2019, the CJD Support Network is pleased to announce that our latest Newsletter (Jan 2022) is now available. Please click here for access. 

To go to all Latest News items please click here

25-1-22

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The language and terms we hear used around CJD and prion disease can be unfamiliar and this can feel overwhelming, particularly when we are first encountering it. In line with our aim of providing information and support to all affected by CJD and those at increased risk, we've put together a new glossary of terms relevant to prion disease which can be found, along with our other fact sheets, here. If there are any terms that you would like to see added to this glossary, please get in touch with us via email (This email address is being protected from spambots. You need JavaScript enabled to view it.) or telephone (0800 774 7317). 

To go to all Latest News items please click here

11-1-2022

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At the CJD Support Network, one of our key aims is to provide accurate, unbiased and up to-date information and advice about all forms of CJD. We are currently in the process of updating the information we provide, and are pleased to announce that new versions of our Iatrogenic CJD and Genetic CJD fact sheets are now available here. We extend special thanks to Professor Simon Mead (National Prion Clinic) and Professor Richard Knight (National CJD Research and Surveillance Unit) for their assistance in updating these resources. 

 We will continue to update our news page as further updated resources become available. 

To go to all Latest News items please click here

07-12-2021

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At the CJD Support Network, we know that the festive period can be challenging for those who are caring for or missing people. E-cards are an excellent way of reaching out to those we love and reminding them we are here. We have designed a series of festively themed e-cards, including an option with wording that is appropriate to be sent to those who are struggling.

To go to our 'Don't Send Me A Card' webpage, where you can donate the amount you would have spent on cards and postage (or another amount if preferred) in exchange for up to 100 e-cards, simply click here. Once you have made your purchase, you will be sent an email with instructions of how to send your e-cards. 

Your recipients will be informed that the e-card was exchanged for a donation to the CJD Support Network and so not only will the e-cards you buy be helping us to continue offering support, they will also help to raise awareness of CJD. 

Thank you for your continued support! Please contact us if you have any queries at all. 

To go to all Latest News items please click here