Saturday 13th November 2021 
2021 Family Support Day at the Macdonald Hotel, Manchester, including 2021 Annual General Meeting (AGM). For further information on the full meeting, see our January 2022 newsletter here. The minutes of this meeting will be available here in due course.

Tuesday 22nd June 2021 
Online support session: managing the symptoms of CJD: Advice for carers. Delivered by Phil Parker (Lead Nurse, National Prion Clinic) and Margaret Leitch (Senior Nurse/National CJD Care Coordinator, NCJDRSU). To watch the full session back, click here

Friday 13th November 2020
2020 Annual General Meeting (completed online due to coronavirus restrictions). To access the minutes of this meeting, click here.

Wednesday 11th November 2020 
Online 2020 Family Support Meeting, session 3: Genetic forms of CJD and risk in families. Delivered by Professor Simon Mead (National Prion Clinic, UCLH NHS Foundation Trust, MRC Prion Unit at UCL). To watch the session back, click here

Saturday 10th October 2020 
Online 2020 Family Support Meeting, session 2: Talking about grief and loss. Delivered by Jill Walton (Rare Dementia Support) and Dr Kirsten Moore (Marie Curie Palliative Care Research Department, UCL). To watch the full session back, click here

Saturday 10th October 2020 
Online 2020 Family Support Meeting, session 1: The diagnostic process. Delivered by Professor Richard Knight. To watch the full session back, click here 

Friday 15th & Saturday 16th November 2019 
2019 Family Support Day at the Burlington Hotel, Birmingham, including 2019 Annual General Meeting (AGM). To access the minutes of this meeting, click here